Thursday, June 18th, 2009

Change in plans

(The userpic photo is not of A.J.) 

After my son's mother and I talked, I've decided to not tell him, right away. Her concern is for her sister--pregnant and caring for three children. How will I handle it when Preston asks about A.J.? "He's not well. He's declining." Some of you may realize I am using the strategy from the "Mom is stuck on the roof" joke. As with any effective joke, it has truth in it.

Preston's mother will come by to get A.J., to bury him next Citrine (another lost "friend") in Preston's godfather's backyard.

For now, I've not slept much, and I've more crying to do.
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Wednesday, June 17th, 2009

Not about MS, not now


 

 

Yes, I’ve been away, dropping in infrequently, and without much news. I should, then, write about how my move has improved things; or, about the patience, concern, and help of my roommate, Tim; or, about the yearly return of the catch-22 of heat and movement. Not today. Not now.


I want to write about the loss of a “friend,” one I had known for 15 years. Over time, he became my son’s “friend,” and everyone who met him adored him. In 1994, though, his need for a friend was so great we made him a part of lives.

 

We--I and the woman I came to love, would marry, and who would divorce me—decided to adopt a cat. I had a cat. She had a cat. We would have a cat.

 

At the Manhattan, Kansas shelter, all but one caged cat clamored for attention. This Maine Coon, with jet-black hair shot through with golden streaks, sat against the cage door looking sidelong at us. I see him, now, reminding me of the punch-line of my favorite Jewish grandmother joke, the one about the number needed to insert an incandescent lamp. “None. I’ll just sit here in the dark. You go on with your lives. You’re young. I’m old. I’ll die soon. Go. Go.”

 

We went and with him in our arms. “A.J.” we named him (Augustus John, the English painter, for no reason but his was the first name to come to mind). He acted as if he couldn’t believe his good fortune.

 

Unassuming, quiet, undemanding. One night, I closed the bedroom window. The next morning, we found our new friend trapped between the window and the screen. He never complained.

 

We watched this Maine Coon scoop food into his paw and lift it to his mouth. He tried to eat shadows. He came for attention but never cried for it.

 

Changes upset him, whether it was my lover’s intense spring cleaning, or our moving preparations. We had learned he had been caught in a tuna trap. His docility indicated he had been someone’s pet and, perhaps, abandoned. Manhattan--college town—irresponsible, selfish students. Yeah, abandoned. We calmed and comforted him without hesitation.

 

During the divorce process (2001 to 2002), my soon-to-be ex-wife offered to find homes for the cats--hers and ours. I declined her offer. Our “friends” and our son didn’t deserve such loss.

 

As my struggles (“managing” my MS, living on my own, trying to finish a doctorate) worsened, I briefly considered getting rid of the cats. My son, who had recently begun talking, said something about “my cats.” No way would I disrupt this relationship. No way in hell.

 

The recent move to Roeland Park proved difficult for him. We were in an apartment that recently housed four people, two big dogs, two cats, and a ferret. The persistent odors I could only tolerate must have driven A.J. nuts! He often shat on the carpet. He yowled for no reason we could discern. What did he think? “Where are the dogs? What is that animal I can smell but not see?”

 

We moved again, to a renovated apartment--new carpets, “fresh” paint, and no animal odors. A.J. calmed, but . . . His age showed in his crooked gait, his weight loss, his dull, bodiless fur.

 

My son and I doted on A.J. Strokes, gentle words, and lap time. We talked about my son’s trip to Florida, and he gave voice to the possibility that A.J. might die while he is gone. Yeah.

 

My roommate called me at work, letting me know he’d found A.J. had died. Not a surprise. A.J. had been declining, sharply, during the past three days.

 

Okay, all right, he was just a cat. The pragmatic part of me knows this and will not share  my sudden tears. For, I will miss him. And, now, I need to tell my son our friend is gone--without being able to hold him as he cries.

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Monday, June 8th, 2009

Again, Subtle and Subversive

 

My nine-year old son left for Florida, this past Saturday. I’d arranged with my roommate to take me to the airport (MCI), where we’d meet my son and his mother. Friday evening, after his mother picked up Preston, I crashed, sleeping for 13 hours.

 

When I awoke, though, I discovered my body had shut down, leaving me with resources enough to get to the bathroom and the living room sofa, where I stretched out and used the TV to occupy a trapped mind. I didn’t get to the airport.

 

Perhaps not a surprise. I have compared myself to an inefficient rechargeable battery--not recharging fully, not recharging quickly. During the previous week-and-a-half, I provided Preston’s primary care, I moved to a new apartment, and I prepared for and started teaching two summer courses. Lots of physical activity, lots of heat and humidity exposure.

 

Not so subtle, not so surprising, after all.
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Saturday, March 7th, 2009

I am, today, Eleanor Roosevelt

First, to my friends who shared well-wishes and sympathy, my thanks and gratitude. *hugs* and *smiles*

E.R. is an idol of mine for many reasons. She wrote, "We must do the thing we think we cannot do." I hold her advice dear and recite it as a mantra.

The cloudy, humid weather, the five or so extra pounds I've allowed to creep on, and financial woes are handicapping weights that I am bearing like a favored race horse. The air pressure pushes me down. the weight causes spinal compression, and money worries leave me feeling impotent. But, things could be worse, and, since they are not, I will move to make the best of things.

I work, full-time. I have health insurance. My son brings me joy.

My friends are in my thoughts and heart, providing lift, reminding me I am not alone.
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Tuesday, November 25th, 2008

I dreamed of walking--

of walking with ease and confidence.

I'd walked half a block before I realized I didn't have my cane. I called back to my son to catch up.

Reality began to intrude when I turned a corner. My bladder began hinting about its needs. As I looked down the city street, I determined which store might have a restroom. I realized, suddenly, how far off was my destination.

Just as doubt creeped in, I awoke, but for a time I felt whole, alive..
 

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Thursday, August 28th, 2008

Ah, "first time"s for children

We got dinner from McDonald's. My son got his usual: Happy Meal, for a boy; hamburger, with only mustard. For the prize, he got the Yoda bobble head.

While he played with this, when we were home, I decided to pull out my Weird Al collection (I didn't sell this CD, boxed set because it was a birrthday gift from my youngest brother). I put on "Yoda," set to the tune of The Kinks's "Lola."

He was surprised and delighted.

He pulled out The Empire Strikes Back videocassette, but I wouldn't let him watch it, because we're listening to the Democratic Convention. I'm letting him stay up to hear his first acceptance speech of a presidential candidate.

And, tonight's speech is another first for this country!
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Sunday, July 27th, 2008

Updates . . .

I got my 2001 Cruiser back, yesterday.. My son and I picked it up before 8:00 AM, with the plan to run errands before the heat became too great for me. Well, the heat came on ahead of schedule. I spent the rest of the day recovering.

"We got lucky," my mechanic told me. "I didn't have to tell you, 'You need a new engine'." Whew! After learning about what had been happening, he offered an assessment that I'm draping in metaphor. The problem with the radiator fan, which had stopped working, may have been lurking in the cave of Automotive Surprises, but the feral dogs of extreme heat and big city driving enraged this beast.

Driving in Lawrence, mind you, never caused overheating. Repeatedly driving my son to his KCMO day camp, and picking him up, during the extreme heat and humidity of summer took this egregious toll on the Cruiser. Why was I doing so? To help my son's mother, who struggled with complications from a pregnancy I didn't have a part in.

*shakes head*

My ex-wife has talked with the "son of a b****" who dropped her. He believes he has met his "obligations" to her. Apparently, he perceived their relationship as a "business arrangement." She and their future son would take care of him in his old age.

*rolls eyes*

Recently, she called me at work, while I was at my desk. "I finally got a hold of you!" she said. "You had a hold of me, once," I replied. "Then, I foolishly let go of the best thing I had in my life," she said, her tone suggesting this is what I was thinking. "You finished the thought," I said.
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Friday, July 25th, 2008

My ex- is such a martyr I want to say to her . . .

"Do you need a match, Joan?"

Her doctor advised her to have a blood transfusion and to take two weeks off because of the miscarriage. She will do neither, in large part because she starts a new job, Monday. As well, she wants to play the heroine for our son. and treat me as her sidekick.

She scheduled a play date for our son without consulting me, and she expected me to pick him up. She claimed she needed rest, and our son needed to socialize; so, it is, from her perspective, necessary for me to help her. She acts as if I haven't been helping her all summer. Hell, my car problems first arose while my son and I were driving through downtown Kansas City, Missouri, when the temperature was 99 degrees, and the heat index 104.

Today, in Lawrence, the temperature is approaching 90 degrees, and the humidity is above 71 percent. I told her it is too dangerous for me to be outside. She had to accept it.

I am immune to her misguided attempts at guilt. I won't play Tonto to her Lone Ranger.

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Thursday, July 24th, 2008

Tonight, it's my turn to cry.

I faced the demands of the past two weeks like a Monty Python character.

The demands of full-time work were an overflowing stein, and my job was to keep the liquid from escaping with only my fingers. For Composition I, which I'm teaching as an adjunct, I had papers to grade, classes to teach, and a final to prepare.

I had to use time for sleep and recharging to care for my son. (I love to be with him, but I must still care for me, so I can care for him.)

My recently purchased vehicle began overheating, and, yesterday I had to drive it from KC to Lawrence, with the windows open, the fan on high, and the AC off. (It astounds me how physically draining worry can be.) I now must find a way to pay for $900 car repairs. (I haven't paid July's rent, yet.)

Each of these hacked away a portion of me, and I stood my ground, defiantly facing further losses, until, left limbless, I shouted, "Come back, here! I'll bite your ankles!" (May not be an exact quote. Please forgive me.)

Earlier, after recommending a Springsteen album to [info]enigma74, I decided I wanted to hear it again. I, however, had sold--during the past few months--all my legally recorded CDs. So, I put on an "unauthorized" collection (a gift from a friend). The first measures of "Thunder Road" played (a lone piano--furtive and longing), and I lost it. Still crying.

My god! I need the release, but I'd much rather have someone to hold me.
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Tuesday, July 22nd, 2008

Ready for a coma--for the relief.

Just finished holding and comforting my son through a half-hour long crying jag, mostly due to insufficient sleep and physical exhaustion. Why, so?

A chunk of my summer has been spent helping my pregnant ex-. I'm not the daddy, but she has been experiencing health problems (e.g., ongoing bleeding), which involved several trips to the emergency room, bed rest, and missed work. I cared for our son a great deal, including to taking him to, and picking him up from day camp, which requires almost an extra hour of travel time, total.

This morning, she called at 5:30, to tell me she'd been experiencing contractions since 2:30, and our son's godfather (a long-time, but now former, lover) would be taking her to the ER. Could I take our son to day camp? I should say no? She gets him up and sends him over. Before we left my apartment, she calls from the ER. She had miscarried.

He knows she went to the hospital, knows she's spending the night, there, but she will wait until this weekend to tell him he won't be getting a baby brother. I don't envy her.

I'm too beat to neatly wrap this up.

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Saturday, July 12th, 2008

Feeling better, but clearly delirious

First sign: I craved, and enjoyed in full measure, a McDonald's double cheeseburger. Second sign: I left home without a pen. I realized this memory lapse after grinding coffee and needing to write the purchase code on the bag.

The evening was so pleasant I rolled down windows and opened the sun roof. Whoa.

On another disappointing note, I am missing my son. He is spending the weekend at a camp in the Flint Hills, outside Junction City. This is the first time he has spent so much time away from his parents. Damn me for helping him write a scholarship-award-winning letter!

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Saturday, June 14th, 2008

My Goodness! I Have Been Busy

I haven't posted in some time (though I've read and commented on other entries) because I've needed to use my diminished resources for other pursuits--caring for my son, struggling with my ex-, teaching Composition I--while working full-time, keeping my home clean. You get it. My spirits are high, and I remain happy.

Want to share this news with my friends: today, I "purchased" a used car--almost six months after I was involved in a crash that totaled the car I'd bought less than a month before. I bought a friend's 2001 PT Cruiser (only two owners and 75,000 miles). Yes, the fuel efficiency sucks, but the vehicle has many pluses.

Co-workers, friends, even the ex- for a time, have been generous, helpful, and accommodating. I enjoyed using the city's para-transit system, and might still do so. But, I missed the sense of independence that comes with driving one's own vehicle.

Post Scriptum: The LJ spell-checker lists "one's" as incorrect. Strange.

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Wednesday, May 21st, 2008

“Another One Rides the Bus”

Though I was approved months ago to use our city’s para-transit system, my schedule--and such--prevented me from using it until today. (To no longer “burden” my ex- for rides to work, I must, and do, find other ways to get to places.)
 
I’d made the reservation on Monday, and came up with four dollars in cash (I borrowed it from my son). Two-dollar fare, each way, and exact change is required.
 
So, a bus arrived at my “door,” and I was taken to my son’s school. His mother and I were meeting with his teacher and others to discuss the outcome of testing for the “gifted” program. When the meeting ended I waited outside for my return ride.
 
During June and July, I will have Fridays off. I plan to utilize this service. Oh, yes, indeed.
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Sunday, May 18th, 2008

When to play the “cripple” card:

 
I scored points with my ex-, yesterday. My son's baseball team is without a coach, and she asked me to call other parents to locate a coach.
 
For me, sustained conversation is almost as taxing as sustained locomotion. To help me, I outlined a script, with possible responses and answers. I recorded a heading in my phone journal before making a call.
 
Do know my voice is masculine and engaging (when we were together, my ex- had suggested I could make money through a 1-900 service, from which I’d recite poetry). So, would the men and women I talk to wonder why I’m not stepping forward to coach? After I introduced myself and explained my purpose, I explained I am disabled, spending much of my time in a wheelchair.
 
The explanation set the listener at ease. Many thanked me for me making these calls. One woman offered to apply a guilt trip on her husband to get him to coach. This morning, she called to let me know he will do it.
 
I succeeded.
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Friday, May 16th, 2008

A few thoughts before bedtime.

  1. An intense week, but the semester's over! Yaaaay!
  2. Heat build-up at work was like a giant fist, squeezing out focus, drive, and ability, until little remained but pulp. It was so "gripping," today, so much of my nervous system had shut down that my brain couldn't convince my body to stay in the wheelchair. 
  3. My son has decided we should reread The Hobbit.
  4. Friday afternoon, July 12, I will present my paper (as yet unwritten), "Science Fiction as Unintended Prescience," at the Science Fiction Research Association's annual conference.
  5. The driving arrangement with my ex- has become untenable. Her behavior towards me is erratic, unreasonable, and martyr like. Could this change be the result of her quitting smoking, going off Paxil, and being several weeks pregnant? These--and many other questions.
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Sunday, May 11th, 2008

The Adventure Begins, I Think.

 
We finished The Hobbit today. We were sad and cried at length at Thorin’s death, as well as Fili's and Kili's. Our spirits were improved by the end. Preston then studied the maps and sang most every song.
 
Considering the things he wanted to know about Gandalf, and Frodo, and Gollum, we may be reading The Lord of the Rings soon.
 
Tonight, though, we start The Star Beast.
 
(I wrote this in Word, first. Preston noticed the names above were considered misspelled by the dictionary. When I told him they could be added to the dictionary, he asked me to do so.)
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Saturday, May 10th, 2008

The Secret Lives of Children?

 
When did my eight-and-a-half year old son attend a rock concert?
 
Tonight, seated in a chair, he listened to Wait, Wait, Don’t Tell Me with me because Adam Savage of Mythbusters played the “What’s My Job?” game. When Adam got the first question about Bram Stoker correct (the author of Dracula stole Oscar Wilde’s girlfriend--how tough could that of been?), my son lifted his arms, held up two fingers on each hand, bobbed his head, and shouted, “Adam Savage! You rock!”
 
Uh-huh.
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Sunday, April 6th, 2008

The culmination of my theatre training . . .

 
is reading ­The Hobbit to my son. We’re still on chapter one, “The Unexpected Party,” and I stopped just after the dwarves had washed the dishes. “This is getting excited,” my son said. Throughout, he had been laughing, expressing surprise and delight, and had been thoroughly engaged. Why?
 
My delivery, timing, and expression. I don’t do “voices,” as if I were a second-rate Jonathan Winters; but I will change pitch and timbre to suit a character. What really sells it, though, are the nuances I pull out of the prose, the narrative. Tolkien had a marvelous way of setting up the turn and the reveal.
 
Okay, I’m tooting my own horn, but my son is eager for me to read more, and such is what matters.
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A Delightful Discovery

 
Remember, I don’t have cable and don’t watch broadcast television. I did, however, want to put on something for background noise, while I worked at the computer and before my son awoke.
 
I decided to put on The Best of the Electric Company, which I’d bought for my son (and for me--I admit it) almost two years ago. As he and I had recently watched disc one, I put in disc two.
 
The discovery? We hadn’t watched it yet!
 
My son got up soon after I started it. We’re enjoying these as-yet-unseen episodes.
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Saturday, April 5th, 2008

Every Writer Needs an Editor. Introducing . . .

 
My son.
 
I am cleaning up a story for submission to The Family Circle short fiction contest. I wrote the story this summer and read it to my son. He liked it enough to ask me to read, again, the next night. He gave a copy to his reading teacher, and she read it to the class. Last night, when I explained what I was doing, he asked me to read the story again.
 
We sat on the sofa and read it together. I read the prose and the girl’s dialogue; he read the boys’ dialogue. I proofread along the way.
 
“‘Fort’“ appears on page six. My son not only remembered I’d used the word on page one, he also remembered the ‘F’ had not been capitalized. Checking for consistency is an important part of editing.
 
He continued to help, catching mistakes and making suggestions--valid ones. I recommended a change to the ending, and he, quite rightly, nixed it. Oh, he happens to be all of eight-years old.
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