Tuesday, November 10th, 2009

Latest Poem

“My Favorite Place” draft one, 10 Nov. 2009

 

[Started this in a creative writing workshop. Written in fice minutes. Modified it only for structure.]

 

My favorite place

Is cool like a refrigerator,

And as dry as a desert.

No damp, wool blanket would cover me,

And whispering brisk air carries

Excess, annoying heat away.

When cool enough, dry enough,

I can walk without my cane,

I can think with precision, clarity, and speed.

In my favorite place,

I am safe,

Needing not to justify

My needs, my methods, my limitations.

My favorite place is as comforting

As the embrace of soft arms,

And as undemanding as a purring cat on my lap.
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Saturday, September 5th, 2009

Another MS metaphor

Keeping moving while still broken. On a '70's reality show (_That's Incredible_ or _Real People_), an inventor demonstrated his modifications to a car that allowed a tire to be changed while the vehicle is still in motion. Yep. Legs prove unreliable, use a wheelchair, for example. (Start Gloria Gaynor music :-) )
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Wednesday, September 2nd, 2009

I'm still here! (Thank you, Sondheim)

A great deal has been going on, but for now I want to share a poem.

“I Tire of the Needle,” draft two, 2 Sept. 2009

 

 

I tire of the needle,

and not because it hurts.

I tire of the needle,

and not because of cost.

I tire of the needle,

and not because I spurn routine.

I tire of the needle,

who greets me every day.

I tire of the needle,

whose point is not so present of that of other pricks.

It need not deliver a sugar high,

or keep my heart from stopping.

It need but only stop--not stop, but slow--

intrusion of the subtle and unseen.

I tire of the needle--

it’s daily reminder of uncertainty.

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Thursday, July 16th, 2009

Math Question about Tracking Time

This summer is the tenth anniversary of my diagnosis of multiple sclerosis. How long ago did the diagnosis actually take place?

The question applies to other anniversaries: the 40th for the launch of Apollo 11, the 100th for the founding of the NAACP, and the 400th for Galileo turning his telescope heavenwards.
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Tuesday, June 23rd, 2009

My Equation of Managing MS

(This afternoon, I’m at work, hiding from the heat--98 degrees, 108 degree heat index. Healthy people are discouraged from spending time outside--no way am I risking things.)

 

Pragmatism=Determination+Awareness-Confidence-Bliss

 

It is not sadness that leads me to this conclusion. I am not morose or gloomy. At times, my state, “Like to the lark at break of day arising / From sullen earth, sings hymns at heaven's gate” (too many syllables in first line—weird), but, like the lark, my state must return to earth. As “Crash” told “Nuke,” who wanted to just enjoy the “moment,” the moment’s over.

 

(My roommate recently finished the second draft of a short screenplay--a well-written one, but his first. The next day, he described his emotional state: spiking and plummeting, repeat. Yeah. I offered advice, based on my years of writing experience: get laid, or start working on the next script.)

 

Keep moving. Not because I’m running away, but because I don’t have the resources to survive in a stopping place. 

Awareness is the stylobate, determination the plinth of the pillar of Pragmatism. Confidence and bliss are the cloying children of Hope, cringing in a corner of Pandora ’s Box. Mixed metaphor aside, the latter do not belong with the former.

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Wednesday, June 17th, 2009

Not about MS, not now


 

 

Yes, I’ve been away, dropping in infrequently, and without much news. I should, then, write about how my move has improved things; or, about the patience, concern, and help of my roommate, Tim; or, about the yearly return of the catch-22 of heat and movement. Not today. Not now.


I want to write about the loss of a “friend,” one I had known for 15 years. Over time, he became my son’s “friend,” and everyone who met him adored him. In 1994, though, his need for a friend was so great we made him a part of lives.

 

We--I and the woman I came to love, would marry, and who would divorce me—decided to adopt a cat. I had a cat. She had a cat. We would have a cat.

 

At the Manhattan, Kansas shelter, all but one caged cat clamored for attention. This Maine Coon, with jet-black hair shot through with golden streaks, sat against the cage door looking sidelong at us. I see him, now, reminding me of the punch-line of my favorite Jewish grandmother joke, the one about the number needed to insert an incandescent lamp. “None. I’ll just sit here in the dark. You go on with your lives. You’re young. I’m old. I’ll die soon. Go. Go.”

 

We went and with him in our arms. “A.J.” we named him (Augustus John, the English painter, for no reason but his was the first name to come to mind). He acted as if he couldn’t believe his good fortune.

 

Unassuming, quiet, undemanding. One night, I closed the bedroom window. The next morning, we found our new friend trapped between the window and the screen. He never complained.

 

We watched this Maine Coon scoop food into his paw and lift it to his mouth. He tried to eat shadows. He came for attention but never cried for it.

 

Changes upset him, whether it was my lover’s intense spring cleaning, or our moving preparations. We had learned he had been caught in a tuna trap. His docility indicated he had been someone’s pet and, perhaps, abandoned. Manhattan--college town—irresponsible, selfish students. Yeah, abandoned. We calmed and comforted him without hesitation.

 

During the divorce process (2001 to 2002), my soon-to-be ex-wife offered to find homes for the cats--hers and ours. I declined her offer. Our “friends” and our son didn’t deserve such loss.

 

As my struggles (“managing” my MS, living on my own, trying to finish a doctorate) worsened, I briefly considered getting rid of the cats. My son, who had recently begun talking, said something about “my cats.” No way would I disrupt this relationship. No way in hell.

 

The recent move to Roeland Park proved difficult for him. We were in an apartment that recently housed four people, two big dogs, two cats, and a ferret. The persistent odors I could only tolerate must have driven A.J. nuts! He often shat on the carpet. He yowled for no reason we could discern. What did he think? “Where are the dogs? What is that animal I can smell but not see?”

 

We moved again, to a renovated apartment--new carpets, “fresh” paint, and no animal odors. A.J. calmed, but . . . His age showed in his crooked gait, his weight loss, his dull, bodiless fur.

 

My son and I doted on A.J. Strokes, gentle words, and lap time. We talked about my son’s trip to Florida, and he gave voice to the possibility that A.J. might die while he is gone. Yeah.

 

My roommate called me at work, letting me know he’d found A.J. had died. Not a surprise. A.J. had been declining, sharply, during the past three days.

 

Okay, all right, he was just a cat. The pragmatic part of me knows this and will not share  my sudden tears. For, I will miss him. And, now, I need to tell my son our friend is gone--without being able to hold him as he cries.

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Monday, June 8th, 2009

Again, Subtle and Subversive

 

My nine-year old son left for Florida, this past Saturday. I’d arranged with my roommate to take me to the airport (MCI), where we’d meet my son and his mother. Friday evening, after his mother picked up Preston, I crashed, sleeping for 13 hours.

 

When I awoke, though, I discovered my body had shut down, leaving me with resources enough to get to the bathroom and the living room sofa, where I stretched out and used the TV to occupy a trapped mind. I didn’t get to the airport.

 

Perhaps not a surprise. I have compared myself to an inefficient rechargeable battery--not recharging fully, not recharging quickly. During the previous week-and-a-half, I provided Preston’s primary care, I moved to a new apartment, and I prepared for and started teaching two summer courses. Lots of physical activity, lots of heat and humidity exposure.

 

Not so subtle, not so surprising, after all.
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Saturday, March 7th, 2009

I am, today, Eleanor Roosevelt

First, to my friends who shared well-wishes and sympathy, my thanks and gratitude. *hugs* and *smiles*

E.R. is an idol of mine for many reasons. She wrote, "We must do the thing we think we cannot do." I hold her advice dear and recite it as a mantra.

The cloudy, humid weather, the five or so extra pounds I've allowed to creep on, and financial woes are handicapping weights that I am bearing like a favored race horse. The air pressure pushes me down. the weight causes spinal compression, and money worries leave me feeling impotent. But, things could be worse, and, since they are not, I will move to make the best of things.

I work, full-time. I have health insurance. My son brings me joy.

My friends are in my thoughts and heart, providing lift, reminding me I am not alone.
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Thursday, March 5th, 2009

Making sense of things


I track my health, daily. So, I've been wondering why I've struggled with sleep disruption, struggles with focus and motivation, and physical weakness. The first culprit would usually be MS, right? If only . . .

When I wake during the night, I'm experiencing tightening of my neck and back muscles. My first thoughts are about money. "How will I pay the [pick one] bill?", "Will I be evicted?" or, "What can I sell for gas money?"

Tuesday, I awoke at 3:30. Choosing action over apathy, I got dressed and went to the supermarket to buy catfood. I wrote a check, knowing it won't be processed until Friday, pay day. Having acted, I was able to return to sleep. But, geez . . .

Yes, I'm moving to be closer to work, and moving in with a friend in order to share expenses. How will I pay for the move, though? Will I be able to get to Sprink Break? Worry, worry, worry.

Yes, things will begin to improve for me, come May, but I need to get to May.

Thank you for letting me pour forth.
 

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Tuesday, March 3rd, 2009

“My Friend, the Wall,” Draft Three, 3/3/2009


My friend, the wall,

Or any vertical surface, then,

Strong enough to support my head,

While my hands retrieve my shorts, my slacks,

My fingers shove in my shirt, close up my fly.

 

I have other friends,

Count my cane among them.

This four-footed friend can not help,

Though, when I need two hands.

 

My kitchen counter,

Like my friend, the wall, then,

Provides the edge I need--

My hands prepare my meals, and, then, wash my dishes.

 

I have other friends:

They let me lean against them,

When my legs, my heart, my hope

Can not, at times, sustain me.

 

Could I’ve ever stood alone, then?

I fell, and failed, the times I tried.
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Tuesday, January 20th, 2009

Fear and MS

Worry, if not fear, woke me before 3:00. I will be moving, around the end of May, from Lawrence, Kansas, to Roeland Park, Kansas. Moving, to another city for the first time in 15 years. Wow! Still, I awoke, afraid.

 

How will I pay for this? The chief reason for the move is to improve my financial situation, but I’ll need to find resources to do so.

 

How will I accomplish this task? Growing up an Air Force brat, I moved often, and was skilled at it. Now, I am unable to do much of the "heavy lifting," unable to lead, by example, the people who will help me.

 

I did get back to sleep after almost two hours. And, I will find answers to these questions, and this task will be accomplished.

 

I experienced an emotional reaction to the future.
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Wednesday, August 27th, 2008

Now that my nervous system has returned to near normal,

 I want to share good news.

I left work early to meet with my new neurologist (Now that he and I have met three times, I will no longer refer to him as "my new neurologist"). The humidity and air pressure hit me with the force of two professional linebackers. Because of the effects on my nervous system, I was over 15 minutes late. The doctor still saw me, though.

He shared with me the results of the MRIs I had last week. Wait for it: from my previous MRIs in 2006, until last week, there have been NO NEW LESIONS on my brain or cerebro-spinal cord.

Hot damn!
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Sunday, August 24th, 2008

Why should I carp about carpal?

(Okay, I'm back, and I don't anticipate ISP disruption for some time.)

I'm typing this while wearing a brace on my right wrist.

How did this happen? Well, I've considered myself a writer since I was 12. I've been using a keyboard since ninth grade. I am a long-time artist and once was a skilled scene painter ([info]quirkstreet, many years ago, saw the fruits of my labors). Since 2003, I have relied upon a cane or a wheelchair. My right hand and wrist have been in near-constant use for over 30 years

Gotta take a toll--know what I'm sayin'?
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Friday, August 15th, 2008

"The left hand knoweth not . . .

what the right hand doeth." Sidney Lanier, Clouds

Yeah, but the left has to increasingly do what the right usually does. My neuro and his technician performed an EMG on the right arm.

Five large, electric shocks, three small ones, followed by five times with a needle to listen to muscle activity. Outcome? Carpal tunnel syndrome. Not severe enough for surgery, but annoying and disruptive.

I must add this to the list of ailments.
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Sunday, August 10th, 2008

Please, accept my apologies.

This morning, I wrote about how I'd soon be starting my first, full-time, college teaching position. Only minutes ago did I remember that about ten years ago I taught full-time for about a year at Topeka Technical College. I resigned the position when I realized the job had become a distraction, taking me away from my doctoral studies.

Six months later, I was diagnosed with MS. I moved from one distraction to another.
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Where have you been, Johnnie Boy, Johnnie Boy?

I am on vacation, a short one, but a vacation. All right, all right. It is a working vacation. Third week of August, I start my first, full-time college teaching position--three sections of Composition I, two of Composition II.

In an earlier post, I wrote about starting Baclofen. I have weaned myself from it. Apparent side-effects were extreme sleep disruption, intense dreaming, difficulty concentrating or getting motivated. Yes, I noticed improvement in my gait and flexibility. For the first time in several years, I could raise my right foot to meet my hands when putting on a sock.

I had to decide which is more important to me, right now: incremental, physical improvement or the clear thinking needed for work.

Years ago, I read the novelization of the second, or third, Star Trek movie. What sticks with me is Mr. Spock's fear of being injured in such a way that, though still alive, he would be without his mental prowess. As my nervous system continues to be damaged by the MonSter, and my brain suffers from the effects of atrophy. I can empathize.
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Sunday, August 3rd, 2008

Danger update, Will Robinson

Temperature now 98 degrees--heat index, 110 degrees.

I wasn't trying for irony in my previous post. Two summers ago, I ended up in the ER because I got overheated. Not happening, again.

I'm not going outside. I'm not even spending time in the kitchen, which faces southeast.

Yikes!
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What is Dangerous?

Handling snakes and spiders Nah. They're friends

Approaching a group of women at a bar to ask one of them to dance? Not any longer. If the answer is "No," and laughter follows me as I walk away, I know the problem is their's, not mine.

Spending any time, outside, when the felt air temperature is 94 degrees? Damn straight!

In Lawrence, the temperature is expected to reach 97 degrees, today, and 100, tomorrow. My plan involves getting to work as early as possible.
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Saturday, August 2nd, 2008

Even Obama misuses it.

(I could write about my double-vision, which keeps me from reading at length; or, the heat exposure from this morning that forced me to crawl from the car to the patio door; but, instead, I'll offer a brief, language rant.)

The subject line refers to the presidential candidate's misuse of the adverb "hopefully." Regarding the ubiquitous misuse of, Red Smith wrote, "I deplore it, I curse it and I'm losing the war."

I am hopeful the knowledgeable among us can fight a holding action.

I do plan to vote for Obama. He is literate, informed, and direct. His opponent's "folksy" demeanor rings flat for me because of his background and prominence in United States' politics.
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Sunday, July 27th, 2008

Still recovering . . .

I'm typing with my left hand. The neck won't hold up my head for an extended time (this works, because I need to see the keyboard).

I cleaned most of the bathroom (I want to scrub the inner shower curtain--must wait until next weekend). Damn! Did it need it. Annoying. My first paying job included cleaning motel rooms, which played to my sense of order. Now, I must quash my frustration about the condition of my home, by remembering my limited resources are usually needed for other things.

All right, all right! I'll lie down for a while.
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