Tuesday, December 25th, 2007

Sum up the day, and share why I keep a journal

 
Okay, Christmas Day. My son spent the morning with me. I had an early dinner at my friend Judie’s with her family. After a wonderful meal, and fellowship, we played Uno Attack, which I’d not played before. At home, hours later, I needed rest, but not MS rest. A wonderful day. My hope is others had a wonderful day.
 
Recently, I found my “first” journal. (Yes, I moved to this apartment in April, and I am still unpacking.)
 
I bought the three-ring binder, with red, plastic cover, my junior year in high school. On the cover, Peppermint Patty and Charlie Brown rest against a tree. She asks, “Chuck, have you ever told a girl you like her?” He replies, “And have her laugh in my face? Nothing doing!!”
 
In it, I recorded thoughts, poetry, aphorisms, and quotations. I pasted cartoons that struck my fancy. I included photocopies of photos of artwork I admire. The last dated entry is 4/16/89: "Fleet Street died today."
 
And, on 11/2/87, I wrote this sentence: [info]trapezebear“has helped me; he reminds me of the things that can inhibit a writer, block him off from his art and his truth.”
 
Keeping a journal helps to remind me that I accomplished things, that I had missteps and doubts, that the past took place.
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Thursday, November 15th, 2007

Two days, two perspectives--from 1998

(Yesterday, day 14 for writing the novel. Click on the link above my userpic to read the pages. To start at the beginning, click on "View Archives," and then scroll down.)

I've posted two journal entries from 1998 at once because of their brevity and opposition.

19 Dec. 1998

A letter from the Chesterfield Film Company, which I was reluctant to open, revealed that I am now a semi-finalist in the evaluation process of the Writer’s Film Project. Amazing! Fantastic! Wonderful!

Though it will be ten more weeks before I learn if I am a finalist, this news is a great shot in the arm. When I didn’t receive anything on the fifteenth, I assumed my application didn’t make the grade. Now I know better and this news should embolden me.

21 Dec. 1998

What a down day was yesterday. I got up early so I could avoid a caffeine headache and to take my medication on time. My body’s desire though was to return to sleep. I ignored its wishes, deciding to venture out to run errands at Copy Co. and Dillon’s.

A dusting of snow streaked the streets. Winter had finally arrived. Copy Co. wasn’t open and neither the Dillon’s on 23rd nor on Mass. had almond croissants.

I briefly scared Ercilia when I called her from the Mass. Street Dillon’s. “The news is not good,” I began. She thought the worst and chastised me for alarming her when the purpose of my call was to tell her Dillon’s had discontinued the almond croissant.

We decided on breakfast at home. She suggested French toast and I bought Pain Ordinaire at Wheatfield’s [sic]. My arrival home felt like the culmination of a months long journey.

I collapsed on the couch and was barely able to get up fro Ercilia’s deliscious [sic] breakfast. After two thick slices of toast, glass of milk, and coffee, I stumbled back to the couch and was asleep before Ercilia left to meet with Gerry. Eventually, I made my way to the bed, sleeping until 3:00.

This lethargy is another indication that I’m building a tolerance for the 50mg dose of Zoloft. Saturday evening, while showering to get ready for an evening out, I experienced another crying jag. Ercilia was sympathetic and reassuring. “I like it when you cry.”
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Wednesday, November 7th, 2007

Hindsight, and all that

(Okay, seventh day of my self-imposed challenge. Though what I posted, today--click on the link above my userpic, is not much, I continue to write the novel and to share the results with you. When you have a chance, let me know what you think.)

Another journal entry from 1998:

18 Dec. 1998
 
Yesterday was mostly a wash. After lunch with Tim I developed (what’s more accurate word?) a monstrous headache that knocked me down. Napping was out of the question, along with thinking, working, or conversing.
 
Judy returned my call at 6:30 [PM]. She took the news about my quitting much better than I expected. She was sympathetic and understanding, and glad that I told her.
 
I remained stretched out on the couch, watching Marx Brothers movies, while finishing Letters from Groucho. An attempt to get to bed early failed due to the pulsing pain behind my left eye.
 
Some Christmas shopping did take place. The frustration of it all probably contributed to my increasing discomfort. Three stores and I couldn’t find a fluffy, terry bathrobe for Ercilia. What I saw was crap. I did find a Chet Baker CD for Tim, and I bought a cellular phone for Ercilia.
 
Today, at Ercilia’s suggestion (after I told her about my difficulties locating an unnamed gift), I asked Kelly for help while we had our weekly coffee at Milton’s. She recommended Victoria’s Secret and lent me a catalogue. I ordered the robe and requested it be sent overnight.
 
Twice, today, I experienced a degree of sadness. One bout was followed by a brief bit of dry sobbing. Am I becoming accustomed to the dosage of Zoloft?
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Monday, November 5th, 2007

"Look Back in Anger." or in understanding

Home today because my legs won't work reliably. I think I know why, in part, put I'll save it for another posting. I still need to post novel pages at NaBloPoMo (click on link above userpic). So, why then am I taking time to post another long-ago journal entry? Waiting, I suppose, while the creative juices recharge.

16 Dec. 1998
 
Seated at Bagel and Bagel after meeting with Kelly to sign a form from TTC and then fueling Ercilia’s car. I used a filled punch card to a get a cinnamon-raisin bagel with plain cream cheese (my usual). I dropped a dollar in the Rush Hour Club Box to pay for coffee in my TTC travel mug. Yes, I could have paid the refill price, but shorts don’t have pockets and I didn’t want to carry a nickel around.
 
The TTC staff Christmas party will be today, at the Harrah’s Casino north of Topeka. Judy made sure I was invited, but I declined. I am opposed to gambling, believing this activity doesn’t make us better people. Peggy’s suggestion that I could come along for the free meal and not gamble is a specious one.
 
As well, I intend to quit TTC due to health reasons. I was still feeling the effects of Monday’s bout with back pain as late as yesterday afternoon. The job, which I throw myself into wholeheartedly, is draining on physical, mental and emotional levels. How can I prepare adequately for comps while carrying such a burden?
 
My mood is much improved over that of yesterday. Recovery from the back pain, combined with the medication, left me doing my best Easter Island statue imitation. Long-faced, impassive, inscrutable.

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Sunday, November 4th, 2007

Chasing a monster in _Time After Time_

 Another jounal entry from 1998. I'll share entries written through the end of this year. Later, after you've had a break, and after I've located entries from the spring of 1999, I'll share again. Nineteen-ninety-nine, after all, was the year when things started to make sense.

14 Dec. 1998
 
Other side-effects I’m experiencing [from Zoloft] include (I need to explore other phrasings) ejaculatory delay, looser stools, and disturbed sleep when I drink too much coffee. I think it also brings with it a certain difficulty with crowds.
 
   
I eventually limped out to my truck, climbed in, lowered my head, and cried.
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Monday, October 22nd, 2007

Anybody remember _Time Tunnel_?

(I stayed home, claiming sickness. Indeed, I am, but all I was was willing to explain in an e-mail to my supervisor is that I am "sick." Not up to explaining the back pain, yesterday, that drained me, or how the weather is pushing me down. "I am sick with MS" doesn't express enough to someone who doesn't have it, or cares for people who do.)

Back to our program: Another pre-diagnosis journal entry. Step into the tunnel and get caught by the spinning, two-color spiral lines.

11 Dec. 1998
 
Two naps and still I move about as if I were an astronaut floating in that underwater chamber at Huntsville. My every movement is labored and slow. I have trouble keeping my head up and find my thoughts trailing away like vapor.
 
Writing a cover letter to the Kaw Valley Independent took twice as long as usual for missives of this length.
 
Ercilia regularly asks how I’m doing, or if I’m feeling better. Her questions are difficult to answer openly. I haven’t noticed improvement, not after factoring in the drowsiness, the lethargy, and sadness. She contends she’s noticed a positive change. In the literature Dr. Keeler gave me, a point was made that others might notice improvement before the person taking Zoloft.
 
I did have a short, productive period in the late afternoon. During the hour-and-a-half Ercilia napped on the couch, I wrote on legal[-sized] page of “How SF Saved . . .,” entered pulled articles in the research database, and copied quotes from How to Write Fast.
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Sunday, October 21st, 2007

Set the Wayback Machine, Sherman . . .

 Another journal entry from the months before I was diagnosed with MS.

10 Dec. 1998

 

Today’s listlessness and lack of activity was joined by a moroseness that followed me like a paid tormentor. “What makes you think you’ve got the stuff? Have you written regularly? That’s the only way to succeed, you know?”

 

Walking away from comps is an option that circles back in a continually degrading orbit. I shared this with Tim. He asked, “What would it mean if I did this?” I’d have to start paying back my loans. As well, my job prospects in academia would be limited to non-existent.

 

My spirits improved by the time we got to KC. At Opus Communications I worked on Spanish, then typed the revised end credits into a computer. I also outlined DDD as a screenplay.

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Saturday, October 20th, 2007

Blast from the Past, Two

Another journal entry from almost ten years ago. Please remember these entries occur about five months before a bout of optic neuritis, which led to a diagnosis of MS,

9 Dec. 1998
 
The drowsiness continued today. I slept in after getting back from Kansas City around midnight and sleeping on the couch so not to disturb Ercilia. Unlike previous times, when I had an up day, a down day, then another up day, this is my second down day.
 
CLAS Undergraduate Services had its Christmas lunch at Piasaino’s. Nancy called two weeks ago to invite me. I had fun, but it was sad at the end. I miss these people.
 
The 45-minute nap that followed the three-hour lunch didn’t recharge me. I woke up floundering, not able to pull myself together mentally.
 
My 3:30 appointment with Dr. Frost was a wash. Our conversation was across the map, from my frustrations with Dr. Keeler to my writing.
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Thursday, October 18th, 2007

Blast from the past, part one

While opening boxes to find books to sell, I've run across many other things, including journals. I want to share a couple of entries. I wrote them about five months before a bout with optic neuritis, which led to an MS diagnosis. And, my reason for doing so? To offer a sense of how MS is at work long before its presence is determined, and how MS is sometimes misdiagnosed as something else. In my case, depression.

12-8-98

Today is my first day on Zoloft (which I keep calling "Zoltoft"). I used a steak knife to cut one of the blue tablets in half. I had it with a bowl of cereal and a cup of coffee.

The headache I woke up with was still with me after my morning walk. It stayed with me until late afternoon. This punctuated a day of drowsiness and listlessness. Though I finished a query letter to Seventeen (about a proposed article on study skills), I wasn't able to do much else.

A concern of mine is that I'm expecting too much from this medication. That it will somehow turn things around & I'll be able & willing to finish a degree I no longer want.
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Sunday, April 16th, 2006

"Look on the bright side of life," Part Three

(Tired this morning. The numbness about my hips and legs remains but is diminished.)

The following may seem like a digression, but come with me and I will bring us back to MS and Adult ADD.

"I still think you have obsessive personality," my ex-wife said after she learned I do have ADD. "You need to talk to somebody about this."

"Can you give examples of obsessive behavior?"

"Keeping your shirts tucked in and your journals."

Uh-huh. I reminded her about the large, crater-like scar at my lower back. Tucked-in shirts minimized irritation. (The scar is now gone, but that's another story.)

"Well, I'll give you that one," she said.

What about the journals? She knew I was a writer, with the awards, produced plays, and publications to prove it. Writers keep journals. Marcel Proust, Dorothy Wordsworth, and the Happy Hooker come to mind.

As a way to manage MS, I increased my journal-keeping--journals for work, school, creative projects, my son, and my health.

This turned out to annoy the two most important adults in my life. One revised events so she wouldn't come off as the "bad guy." The other didn't want to be reminded of his failures to follow through on our collaborative efforts. The immediacy of my journals was in opposition to their selfish, or flawed memories.

I did speak to my psychiatrist about my ex-wife's concerns.

"If a behavior has a positive effect on one's life, can it be considered as obsessive/compulsive?" I asked. "No" was the answer. Then I explained why I asked.

The good news was that my management of MS dove-tailed into the management of ADD. Unknowingly, I practiced behaviors that benefited me. An ADD diagnosis allowed for further, specific treatments.

During the past three years, I have lived on my own, completed my doctorate, remained gainfully employed, and cared for my son half of each week. How do I know this? My journals continue to be a record of my missteps and my successes.
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